We
had a straight forward pregnancy even though we were under consultant care and
classed as high risk. it was a mixture of emotions throughout the
pregnancy. Our 2nd rainbow was born 5 days early, We had a
beautiful little boy who arrived in to this world on 13th September 2016 at
11:39 weighing 8lb 14oz, we named him Andreas Jack Smith. we got out of
hospital and came home 14th September 2016. He doing really well, he has
been to kingsthorpe crematory with his big sister and met his big brother, we
tell him about Angelo every day and know that he is watching over us. Angelo we
will never forget you, we love you so much, Love Mummy, Daddy, Alicia Jasmine
and your new little brother Andreas Jack x x x x
Our T18 Journey with our son Angelo Jack Smith
This is about our journey throughout our pregnancy and the diagnosis of our son of edwards syndrome also known as trisomy 18 or t18.
Thursday, 5 July 2018
December 2015
This
is a strange month as i am still feeding Alicia and on the pill, I have just come out of hospital with Alicia as shes been poorly with bronchilitis, i have just found out i am pregnant again with baby number 3 that is due the 18th
September 2016. I'm not sure how to feel about this as it defiantly was not
planned but i belief that its meant to be and that everything happens for a
reason, hopefully this pregnancy will be as straight forward as Alicia's.
January 2015
We had a straight forward pregnancy even though we were under consultant care and classed as high risk. it was a mixture of emotions throughout the pregnancy. there was times where our rainbow had reduced movements and had to be monitored more. Our rainbow was too impatient and was born 4 weeks early, We had a beautiful little girl who arrived in to this world on 28th January at 20:03 weighing 6lb 120z, we named her Alicia Jasmine Smith. Alicia had to be taken to the special care baby unit 2 hours after she was born as she was having problems breathing and needed some help, she spent 7 days on there before being allowed on the ward with me. She then lost a lot of weight and had problems establishing her feeding and had jaundice. we got out of hospital and eventually came home 6th February 2015. She is now doing really well, she has been to kingsthorpe crematory and met her big brother, we tell her about him every day and know that he is watching over us. Angelo we will never forget you, we love you so much, Love Mummy, Daddy and your little sister Alicia Jasmine. x x x
Wednesday, 18 March 2015
June 2014
I found out that we were pregnant with our rainbow on 14th June, i was scared and excited all at the same time, Angelo Jack had sent us our rainbow, hand picked by him and sent to us. Our Rainbow was due 23rd Febuary 2015.
May 2014
We are off on our 1st Holiday together since we lost Angelo, we are taking one of his small bears with us so that we have a small part of him with us. We are flying to Zante in Greece on 13th May, so excited for it. While we are away we will write angelo's name in the sand and take a photo so he comes with us on holiday too.While we were in Greece i had a sneeky suspicion that i was pregnant, i wasn't sure so just ignored it and carried on enjoying our holiday.
November 2013
16th November, I can’t believe it has
been a year since your funeral, it has gone by so quickly, mummy and daddy have
been talking about burring your ashes at kingsthorpe crematory as we have come
to a point in our lives where it’s time to move on but never forget, you will
always be loved and never forgotten as you are our special little boy
20th November, today mummy and daddy have
laid you to rest at kingsthorpe, we will visit you everyday but it’s now time for
you to be laid to rest so that you can rest in peace, fly high our special
little man, love you to the moon and back again.
October 2013
26th October,
today is the day that we are having your party for your 1st
birthday, i hope you are watching over us and laughing and smiling at your
mummy and daddy as we have a good time just for you, we played on the bouncy
castle, released balloons and lanterns, we hope you got them, love you lots and
miss you millions.
27th October 2012, Happy 1st Birthday Angelo Jack, this is a picture of his birthday cake, made by his great grandma, we still celebrated his birthday even though you are up in heaven.
27th October 2012, Happy 1st Birthday Angelo Jack, this is a picture of his birthday cake, made by his great grandma, we still celebrated his birthday even though you are up in heaven.
September 2013
I am so pleased to say that we have
been nominated for the butterfly awards and that we have got to the final stage
for voting, to say i am overwhelmed is an understatement.
The butterfly awards is an annual event, it is a special black tie/ cocktail dress event where people from all over the UK will come together to celebrate and recognize the achievements of families over coming baby loss and the health care professionals that support them. There are 14 categories and we have been nominated for author/blogger which is international. We are 1 of 7 people who have been nominated for this award. It opens for voting on 1st October 2013 and we have to get as many votes as possible. The awards ceremony will take place on 19th October 2013 in Birmingham. When i can share my profile i will be sharing it on to my blog. I hope all the people who have read and followed our journey will support us and help us to get as many votes as possible. Thank You for reading and supporting us.
I am overwhelmed to get this far as i never thought in a million years that i would even get this far, I want to thank everyone who nominated me and our blog and thank everyone for there ongoing support through our journey
The butterfly awards is an annual event, it is a special black tie/ cocktail dress event where people from all over the UK will come together to celebrate and recognize the achievements of families over coming baby loss and the health care professionals that support them. There are 14 categories and we have been nominated for author/blogger which is international. We are 1 of 7 people who have been nominated for this award. It opens for voting on 1st October 2013 and we have to get as many votes as possible. The awards ceremony will take place on 19th October 2013 in Birmingham. When i can share my profile i will be sharing it on to my blog. I hope all the people who have read and followed our journey will support us and help us to get as many votes as possible. Thank You for reading and supporting us.
I am overwhelmed to get this far as i never thought in a million years that i would even get this far, I want to thank everyone who nominated me and our blog and thank everyone for there ongoing support through our journey
The voting for the butterfly awards
is now open, please head over to our profile and vote for us, the link is http://www.thebutterflyawards.com/index.php/voting/userprofile/stacey89
Thank you to everyone for all their support.
Thank you to everyone for all their support.
We didn’t win an award at the
butterfly awards but i am so proud of what i have achieved and to get as far as
i did, part of it is raising awareness of trisomy 18 in memory of my son and
keeping his legacy and memory alive.
December 2012
1st December 2012, Angelo Jack you should
be 5 weeks old today. Today is also your Auntie Laurissa’s 6th
birthday. Mummy completed your project with the help of Nanny and Uncle
Nicholas. All your Christmas tree ornaments are nearly gone already, I can’t
believe how quick they have gone but it’s amazing as there is many people who want
to have one to remember a very special little boy. Mummy is going to have to
make more for you to keep up with the demand for them, just can’t believe how
well they have gone down. It’s all for you Angelo Jack my special little boy.
Mummy and Daddy miss you millions and loves you with all my heart but all your
little projects are helping me as I know you will live on in many people
hearts.
7th December 2012, I went to London with
Joel, we went to Saint Paul’s church for the SANDS lights of love service. It
was amazing, it was a lovely service. We lit candles for Angelo and remembered
our special little boy. We stayed in a
hotel for the night and had a walk around London. We went to winter wonderland
and then back to the hotel. It was a nice break away and a nice change of scenery.
8th December 2012, while we were in
London we went to Saint Paul’s cathedral before coming home. We had a look
around the cathedral and walked up to the whispering gallery. While we were
there we lit a candle for Angelo. Angelo Jack it is your daddy’s birthday today
but you should also be 6 weeks old as well today. Mummy and Daddy love you so
much. I went out on my first night out since having Angelo, I went to a lady’s
night with mum and wow it was a good night.
9th December 2012, I went to a children’s
Christmas party with mum and the kids today, I am so proud of myself as I had a
cuddle with a 6month old little boy, it’s the first cuddle I have had with a
baby since I had Angelo. It was hard but yet it felt so right. I feel that
Angelo is saying its ok mummy, it’s time to move on, he says I am healed now
I’m in heaven and now it’s time for you to heal. I will always love you Angelo
Jack, I will never forget you. You will always live in my heart and through me
you will live on now and always.
10th December 2012, I went to the
hospital today to see the consultant with regards to the 3rd degree
tear that I had from having Angelo. They explained what it was and have said
that I got it because Angelo was back to back and was born being a star gazer
with his head extended back and the fact that he was born so quickly too. They
have given me some good news and have said that they are happy for me to have
another normal birth again in the future as I have had no major problems. They
have said that it’s healing very well so all in all a very good day. I have created another memorial page for
Angelo today too, the link is http://angelo-jack-smith.gonetoosoon.org/ feel
free to go on and leave a candle or a written tribute.
13th December 2012, I received a letter
in the post this morning saying that one of your balloons had been found, It
was found between clapthorn and upper Benfield near oundle, it was found on the
7th December, the day before your Daddy’s birthday.
14th December 2012, I rang the gentleman
up who found your balloon and asked him which one it was and he informed me
that it was the red and silver love heart that mummy and daddy released for
you. I thanked him very much for sending us a little note and also for sending
us back the note that mummy attached to your balloon.
16th
December 2012, i set up a fundraising page on Facebook for Angelo
Jack, the link for this page
is https://www.facebook.com/pages/Angelo-Jacks-Special-Star/464223330303095.
Angelo Jack you are so special to us, not a day goes by where
we don't think about you. Angelo's Christmas tree
decorations are selling extremely well.
23rd
December 2012, today is Mummy's birthday, its so hard knowing that i should
have an 8 week old baby here celebrating with me. Its my 1st birthday as a
Mummy and you should be here with me not up in the clouds.Your Daddy bought me
my 1st Mum card and made me cry with it, i know you are always with me Angelo.
Love you so much Angelo Jack.
25th
December 2012, Christmas day was so hard without you, my mind did nothing
but think about you, Mummy had a few tears, and Daddy was working. Both of your
Nanny’s had a few tears too. We all miss you dearly but there’s not a day that
goes by where we don’t think about you. Angelo Jack you should be here with
us celebrating your 1st Christmas with us, Mummy and Daddy miss you
so much it hurts, we ask our selves will it ever get any easier, will our
hearts ever mend. Daddy bought me a star to remember you by, it means the
world to me, Nanny and pappy got us a tree in your memory, Nanny and
Grandad got us a pooh bear with angel wings in your memory, you will never ever
be forgotten. Love you and miss you millions son. I just
wish I could turn back the hands of time and have you here with
us. We miss you so much Angelo Jack.
29th
December 2012. We are doing well with your page, we have 98 likes on
it all ready we are hoping to get it to 100 by the new year.
Together we will raise awareness of T18 and together you will live on
through your memory and in us. Love you so much Angelo Jack.
31st
December 2012, we are at 100 likes on your fundraising page. The link
is https://www.facebook.com/pages/Angelo-Jacks-Special-Star/464223330303095
Please check us out, Like and share, help us to get the awareness of T18 out there and open up people eyes. Thank you for your support throughout our pregnancy, please carry on supporting us by helping us to get the awareness out there. Thank you
Please check us out, Like and share, help us to get the awareness of T18 out there and open up people eyes. Thank you for your support throughout our pregnancy, please carry on supporting us by helping us to get the awareness out there. Thank you
November 2012
2nd November 2012, Angelo came back to
Northampton today; he’s finally at the funeral directors. Angelo was playing games this morning, the
cheeky little monkey that he is, I heard the knocker go on the door 4 times, I
got up to have a look, there was nobody at the door then I heard the letter box
go and I got up to have a look and again nobody was there. I believe it was his
way of saying mummy I’m home and I’m still around, I’m watching over you. Me
and Joel went to see him this afternoon, I walked in the room and he was
wrapped in his monkey blanket and dressed in his mummy’s little man vest and I
love daddy baby grow. I had to unwrap him from his blanket and check to make
sure he was left in the same clothes that we put him in and that he had his
nappy on. He looked so peaceful and perfect laid in a white Moses basket. He
looked like he was sleeping. We put his teddy bear in with him as he looked so
small and lost in the Moses basket. I picked him up and had a cuddle; daddy had
a cuddle with him too. We sat talking to him and telling him stories. Daddy was
farting and blaming Angelo, We lit a candle for him as there were candles in
the room with him. We sat with Angelo for about an hour and then went to mums
after. I gave Angelo a kiss and put him back in the Moses basket and told him I
loved him and I would see him tomorrow with daddy and his great grandparents.
When we went to mums Laurissa gave me a picture that she drew for Angelo, she
said Stacey send this to Angelo so when we go and see him again tomorrow
morning I will put it in with him for her.
3rd November 2012, took Joel’s
grandparents to go and see Angelo today, they were over the moon with him. Went
to town with Joel today too, went to the tattoo shop with Angelo’s footprints,
told them what I wanted doing and they are designing me my tattoo using his
footprints. I am going back to see Angelo on Monday after we have sorted out
his funeral arrangements. I can’t wait to see the design for my special
tattoo. I set up a memorial page to
Angelo, The link is http://angelo.jack.smith.27.10.2012.muchloved.com/frame.aspx?.
You can light candles on there and write little messages to Angelo too.
5th November 2012, Midwife came to see me at home again today; she has taken my notes away to copy for me and will bring them back to me on Thursday so that I have a copy to keep. I won’t be discharged from midwifery care yet as they feel it’s too soon to discharge me and want to keep a closer eye on me. I have to go to the funeral directors this afternoon to sort out Angelo’s funeral with his daddy, then I can go and have my cuddle with Angelo and see our special little boy. We received Angelo’s photos in the post this morning from now I lay me down to sleep. A few of our favourite photos are below.
5th November 2012, Midwife came to see me at home again today; she has taken my notes away to copy for me and will bring them back to me on Thursday so that I have a copy to keep. I won’t be discharged from midwifery care yet as they feel it’s too soon to discharge me and want to keep a closer eye on me. I have to go to the funeral directors this afternoon to sort out Angelo’s funeral with his daddy, then I can go and have my cuddle with Angelo and see our special little boy. We received Angelo’s photos in the post this morning from now I lay me down to sleep. A few of our favourite photos are below.
6th November 2012, went and saw my
godmother today, had such a laugh over there, Nanny gnome said she had a white
feather on her pyjama bottoms this morning, I believe Angelo sent it to her.
Angelo was playing games with the front door again today too, it kept knocking
but nobody was there, he’s being so cheeky. We went and saw Angelo with his
daddy. We spent an hour with him before we came home.
7th November 2012, should have a phone
call today with a date being confirmed for Angelo’s funeral. We have asked for
family flowers only and then anyone else can make a donation to Angelo’s fund
to get his charity set up for 4d scans so that we can pay for other people with
trisomy babies to have them done. Rang the midwife again today as my wound down
below is starting to open up, I have to go to the doctors and get another 2
courses of antibiotics. Angelo Jack is determined to make mummy wait even
longer to have her vodka. The vicar rang us today to arrange an appointment to
come and see us; he’s coming tomorrow morning at 11am to arrange the funeral
service arrangements for Angelo Jack. We went and spent an hour with Angelo; I
gave him a cuddle and lots of kisses and sat talking to him and telling him
stories about his mummy and daddy. We put him back in his Moses basket and said
goodnight to him, told him we loved him and that we would be back tomorrow.
8th November 2012, my midwife came to see
me again today, she’s on holiday for 2 weeks now and will come and see me again
when she gets back. The vicar father Nicholas came to see us today to discuss
Angelo’s service with us and what we wanted. We have decided that Angelo will
travel with us and we will carry him in. We will have family flowers only and
anyone else can make a donation to get Angelo’s charity started up. Angelo’s
funeral is on Wednesday 14th November at 11am.We went and saw Angelo
again today, spent an hour with him, we told him stories about mummy and daddy.
9th November 2012, we went in to town
today to have a look at the designs for Angelo Jack’s special tattoo that we
are having done. Wow my butterfly design is amazing, it’s so much better than I
imagined. I am going to have it done tomorrow so that it’s done before his
funeral on Wednesday and then I will always have a part of him with me. Going
to see Angelo this afternoon and I will be telling him all about his special
tattoo. Mummy and Daddy love you so much Angelo Jack.
10th November 2012, we went and saw
Angelo this morning, spent an hour with him, talking to him and having cuddles
with him. We told him all about out tattoos and that today is the day that we
finally get them done. After we had had our cuddle with him we put him back in
to the Moses basket with his bears, drawings that Laurissa and Peter done,
photo of Mummy and Daddy, poem that Auntie Jean wrote and his red rose from
Mummy and Daddy. We said goodnight, told him that we loved him and that we
would be back on Monday afternoon to see him again. This afternoon we went to
have our special tattoos done in memory of Angelo Jack, ouch it was painful but
Angelo is worth every ounce of pain. I absolutely love our tattoos; they are
amazing and mean so much to us.
13th November 2012, going to see Angelo
for the last time today before his funeral tomorrow, absolutely dreading it,
feel sick to the stomach just thinking about it. I don’t want to let my son go
and say goodbye to him, I want him to be with here with us and not for him to
be an angel. It’s just not fair, we would of looked after him and loved him,
it’s such a cruel world, it makes me so angry when you look around at people
and at the world and you see so much of people that are not looking after their
children properly or dumping their children on every tom dick and harry. I
still can’t stop asking myself questions, why did this happen to us? Why were
we given our son for him to be taken away? I try and think positive and look
forward to the future but it’s not always easy. We went and saw Angelo Jack
again today for the last time, we sat talking to him and holding him close. For
me it’s been a day of tears, it was hard knowing I was seeing him for the last
time and leaving him behind. We put him back in his Moses basket, gave him a
kiss and said goodnight to our precious boy. I left in tears today but I know that
Angelo will always be with me, he will always be in my heart and watching over
me. I love you so much Angelo Jack, you are the brightest star in the sky
shining so brightly.
14th November 2012, today is the day of
Angelo’s funeral, I hardly slept last night but then neither did Joel. I was up
at 7.30 this morning, fighting back the tears. I went on my laptop to try and
distract my mind; we went and got ready at 10am. Angelo came home briefly at 10.30;
we left at 10.35 to get up to the crematorium for 11am. We travelled with
Angelo and held on to him in his coffin all the way up. We carried his coffin
in to lay our precious boy to rest. We put his coffin down and told him we
loved him and gave him a kiss goodnight. We lit our precious sons candle at the
beginning of the service and blew it out for him at the end. We had I’m your
angel by Celine Dion played when we bought him in and fly by Celine Dion when
we came out. I don’t think there was a dry eye in the crematorium. It was a
beautiful service. We only had family flowers and those who wish to have made
donations to Angelo’s fund in his memory, we are using his fund to set up a
charity to pay for other people with trisomy’s to pay for them to have 4d
scans. We came home and had something to eat and plenty of drinks, we let
Angelo’s balloons off at home as they were going to be done at the crematorium
but we both forgot about them being in the car so we just bought them home and
done it at home. Each balloon had a little note attached to the string explaining
why it was released and for whoever finds them to write a card or a letter back
to us telling us where it was found and which balloon it was that they have
found. 4 balloons were released in total and we also released some lateens when
it was dark. It was beautiful, well until one got stuck in the tree in the
garden so dad had to get up the step ladder and release it with the washing
line pole so that it could carry on floating up in to the night sky. There had
to be 1 that got stuck in the tree and didn’t want to float away, we were all
laughing.
15th November 2012, we sorted out the
house today and tried to get back to normality as best as we can. We took
Angelo’s flowers up to the crematory and put them on to my Grandad’s grave, my
big sister’s grave and Michael’s grave. They look absolutely beautiful on their
graves. I kept 2 bunches of flowers at home and put them on the table. Love you
so much Angelo Jack, can’t stop thinking about you my special boy.
17th November 2012, Angelo Jack you should
be 3 weeks old today, not a day goes by where Mummy and Daddy don’t think about
you. I can’t believe how quick all this time has gone, it’s just flown by. One
day just seems to roll in to the next. Mummy and Daddy miss you so much son,
it’s not the fact of knowing you have gone to be an angel its knowing you are
never coming back that’s killing us more than anything else. We will have you
home soon and believe me that day can’t come quick enough, we just want your
ashes home so that you are at home with us and where you belong.
19th November 2012, we finally got our
precious little boy home today; he’s now at home, home where he belongs. So
glad he’s home, now I might be able to relax a bit more because I know he’s
safe here with us. He’s staying at home with us for as long as we want him here
until we are ready to bury him. Angelo is sitting on top of the chest of draws
with all his teddy bears and underneath the casts of his feet. Love you so much
Angelo Jack, miss you millions but I know you are always in your mummy’s and
daddy’s mind and heart. You are the brightest star in the sky and you are
watching over us.
24th November 2012, Angelo Jack you
should be 4 weeks old today. Mummy is going to start on a little project just
for you. Mummy is going to make stars and angels Christmas tree decorations and
then mummy will sell them to raise money for your fund. I am doing it for three
reasons, one is so that my son’s memory lives on, two to raise awareness of Edwards’s
syndrome and three to enable us to help other mums who have a fatal diagnosis
and choose to carry on with their pregnancy.
October 2012
3rd October 2012, we are now 37 weeks
exactly; Angelo is doing very well and still proving the doctors wrong. I my
midwife again today, she is very happy with Angelo and with me; she too is
hoping and praying for a miracle. My bump is measuring 34 centimetres today so
he is still growing. Angelo is 4/5 palpable so only 1/5 of his head is engaged
in to my pelvis, I am surprised at this after moving stuff over the weekend.
Angelo’s heart rate is nice and regular, it was 134 beats per minute today. I
am going back to see my midwife again at 39 weeks, well providing I haven’t
already had him and I see my consultant next week. Angelo still likes to play
football with his daddy and with mummy’s ribs. I should be getting my pictures
back next week too from our photo shoot so I will be sure to put some of them
on so you can all see them.
4th October 2012, I spent the afternoon
and evening at mum and dad’s house, I went and picked Laurissa up from school,
we did the usual routine of going to the cake shop and then over to the other
shop for magazine and sweets. When we got home she sat poking my belly trying
to get Angelo to move but he wouldn’t move. I had some dinner and a cold drink,
we sat reading Laurissa’s magazine and Angelo decided he was going to start
moving and kicking. Laurissa put her hand on my belly and could feel him giving
her nice big kicks and moving about, she loved it; her face was amazing to
watch her expressions. Later on in the evening she came back for me, she was
poking my belly to try to make him move but he wouldn’t move, mum sat squirming
at Laurissa poking my belly, me and Laurissa did nothing but laugh at mum. Mum sat the other side of the room and could
see Angelo moving about in my belly. The daft dog decided it was going to
cuddle up to me and use my belly as a pillow, well that is until Angelo decided
to move and kick the dog then the dog looked at me gone out and moved.
5th October 2012, we are 37 weeks and 2
days, only another 19 days until his due date, Angelo is doing so well. We are
so proud of him. I am finding it so hard to stay positive now. When I go out I
always get asked how long I have left, what I am having. These are so hard to
answer as I don’t know the outcome with our son; I don’t know how much time
that we have left with him, all I know is that he is poorly and nothing can
change it. I am scared of not knowing how much time we have left with him, if I
had a magic wand and could make it all go away then I would, my only wish is
that I have our son with us forever and for him not to poorly. Angelo Jack
mummy and daddy love you so much, you are out little miracle and our star. X x
x x x x x x x
6th October 2012, we are now 37 weeks and
3 days, only another 18 days left until Angelo’s due date. Angelo has been sticking out his feet and
arms out of the side of my belly. I have been out with mum and Laurissa most of
the day today, bought Angelo a £30 bear for 20 pence, bargain of the day. Had a
lovely take away with Joel then went up to blockbuster and rented some DVD’s,
spent the evening in front of the tele chilling out and cuddled up watching
different DVD’s. I had a look at the statics for our blog as well today; it has
had 9048 views, let’s see if we can get it to 10000 views by the time Angelo is
born.
8th October 2012, we are now 37 weeks and
5 days in to the pregnancy. I have been back to Milton Keynes again today and
seen my consultant. Dad came with me as Joel was at work, the consultant did
another scan. He said that Angelo has got ridiculously long legs. Angelo was being stubborn as
he kept kicking and moving while my scan was being done, he was kicking the
probe when trying to check the blood flows to him and the placenta, trying to
scan his head to get a measurement he kept shaking his head. I am convinced he
was saying no you’re not getting me today. My consultant is happy with Angelo
and with me and says that I don’t have to go back and see him again until the
25th October. Hopefully I have had him by then as I really don’t
want to be induced. I just have to see my midwife every week just to keep an
eye on everything. Angelo is so active; he’s always moving and playing football
with his daddy’s hand.
10th October 2012, we are now 38 weeks
and Angelo is still going strong and fighting. Only another 2 weeks left until
his due date. We got our special disk back today with the pictures on from our photo
shoot, I will put some of them on to here but you can view them all on Angelo’s
page on facebook, the link is https://www.facebook.com/groups/262631393838701/.
Angelo got bought a lovely vest with his name on from his nanny and granddad
too, it’s so cute. Angelo is making us so proud by getting this far and still
fighting, he is our little miracle and we love him so much. Had a look at the
stats for Angelo’s blog today, we have hit the 10 thousand mark and gone past
it, we are now at 10282 views. I am amazed, so proud of our son, can’t believe
we have gone past the 10 thousand mark, our target was 10 thousand by the time he’s
born and we have hit that before he’s even born. Just want to say thank you to
everyone who is reading and following our blog, feel free to share it, it will
help us to get the awareness out there and open medical professional’s eyes. It
will get the positives out in to this world that will help others that just get
told the negatives and nothing positive.
14th October 2012, we are now 38 weeks
and 4 days in to the pregnancy, Angelo is doing well, he’s fighting strong, and
he is a little miracle. My bump is starting to drop down now too. Blog has had 10789 views to date, I can’t
believe how well it is doing and how many views that it has had.
17th October 2012, we are now 39 weeks in
to the pregnancy, I never thought in a million years that we would ever get
this far, Angelo is so active, he’s far too comfy in my belly and is showing no
sign of appearing anytime soon. I saw the midwife again today, my bump is
measuring 36 centimetres, Angelo’s heart rate was 130bpm and he is now engaged
in my pelvis by 2/5. Angelo is such a fighter, he’s so strong. I see my
consultant again next week on Thursday (25/10/12) and I see the midwife again
on 29/10/12. With any luck I have had him by then but at the moment he’s far
too comfortable. Our blog has now had 11598 views.
21st October 2012, we are now 39 weeks
and 4 days in to our pregnancy; we have got 3 days left until Angelo’s due
date, a stage where we never thought that we would ever get too. Our son is
such a little fighter, he’s a miracle already. Angelo is still fighting and
proving all of the doctor’s wrong, we are so proud of him and what he has
already achieved in these past few months. We can’t believe how far we have
come from when we first found out in the beginning and to where we are now,
Angelo loves to play football with his daddy even though he is a bit quieter
than what he was but he is still moving about. He plays football first thing in
the morning and last thing at night; occasionally he plays football throughout
the day but not very often. The question is now are we going to have any more
bump photos or will we have pictures of Angelo. Who knows what will happen
apart from Angelo, Angelo is being just like his dad and likes to keep me
waiting just like his daddy. I know Angelo will come when he’s ready, but
please come soon son as mummy and daddy would like to meet you and have you in
our arms, Mummy would also like to have her body back now too, please and thank
you son, we love you so much, carry on fighting and proving them doctors
wrong. We have had 12383 views of our
blog, I am amazed. If it carries on at this rate we will end up with 15000
views before he is born.
25th October 2012, we are now 40 weeks
and 1 day in to the pregnancy, who would have thought I would still have been
here now. We saw the consultant at Milton Keynes again today, they did a
stretch and sweep and booked me in for induction of labour. The induction has
been booked in for Monday 29th October. Angelo is now 3/5 engaged in to my pelvis. They
said that my cervix was 1centimeter long, 1 centimetre dilated, the cervix is
soft and central, and his head is sitting at a station of minus 3.They said the
cervix is favourable for induction. They did a scan just to check all of the
blood flows to the placenta, cord and to Angelo. His estimated weight is now 5
pounds exactly. I have to ring labour ward at 8am on Monday to ring up to make
sure they have a bed for me and for them to give me a time to go in. They can’t
confirm that he has got an omphalecele and they are not 100 per cent sure about
his heart, we will just have to wait and see what condition he is born in and
asses from there. I am having intermittent monitoring as no need for continuous
as they won’t act on any signs of fetal distress, they also won’t do a caesarean
section for fetal indication, they will only do it for maternal reasons if
absolutely necessary. I am scared, apprehensive and excited all at the same
time, my head and emotions are everywhere. Yes ok I now have a date but it’s a
date where I know that Angelo will become so much more vulnerable, the safest
place is for him to be in me but I know that he can’t stay there forever.
Angelo Jack, mummy and daddy love you so much, carry on fighting and proving
them doctors wrong, you have already stuck your fingers up to them and proved
them wrong to even come this far, your mummy and daddy as so proud of you.
Angelo pleas be born before Monday as mummy really doesn’t want inducing, mummy
wants to be left to do it on her own. Our blog has had 13865 views to date.
27th October 2012, we are now 40 weeks
and 3 days in to the pregnancy, I had a very bad night, I went to bed at about
11pm and fell asleep at about 1am, I was awake by 4am with bad back ache and
period type pains that were going down my legs and in to my thighs. I got up at
about half 5 and was walking around the house as I was so uncomfortable, I had
some paracetamol at 6 and went back to bed to try and go back to sleep. I fell
back asleep and woke up at 8.30, I still had period type pains, I got up at 9
and went to the bathroom, and I had a very bloody show. I rang my mum and rang
labour ward. Labour ward asked me a lot of questions and told me to stay at
home for as long as I could manage, they did tell me due to me being anxious
about being in Northampton and having to travel to Milton Keynes, I could go in
to be assessed if I wanted to but if they assessed me and I was not in
established labour then I would be sent home again. I told them that I would
stay at home for now, they told me to have a bath and have some paracetamol and
if I wanted to go in at any point then to ring them up again. I had a bath but
this made it worse so I got out, got dried and dressed and put my TENS machine
on. I came downstairs and had a cup of tea and 2 bits of toast, later on I had
a banana. I have spent most of the morning sitting bouncing on my ball and
listening to music. I have also spent some of the morning on my laptop on
facebook talking to my friends. I was supposed to go to town this morning for a
cup of tea and a catch up with one of my friends but its defiantly not going to
happen now today, I may try and go for a walk at lunch time with the in-laws
and the dogs to keep things going and try to speed it up at bit. Angelo Jack
please be born before Monday so that mummy doesn’t have to be induced, this is
painful enough as it is but I have to keep thinking that each pain is 1 pain
closer to meeting our special boy. Carry on fighting and prove them doctors
wrong, you need to meet so many special people; we all love you so much. I rang
the hospital again at 3pm telling them I was coming in as I could no longer
cope at home, Joel went and picked up my mum and came back to pick me up. We
got to the hospital at about 15.45; I was examined at about 5pm and was found
to be 8centimeteres. I was using the entonox when I got to the hospital as the
contractions were more intense. Of course Joel had a few puffs of the entonox, I
don’t remember much about my labour, and I can’t even remember the name of my
midwife who delivered Angelo. Angelo Jack was born at 18.39, he was born alive,
and he was given oxygen and assessed. He was dried and wrapped and given to us.
Angelo didn’t pass until he had met his mummy, daddy, nanny, grandad, auntie
Laurissa, Uncle Nicholas, peter nanny, pappy and his auntie Mel. He had a
cuddle with everyone before he passed. Angelo Jack is just so perfect in every
way. He passed and went to be with his great grandad, great grandma, Auntie
Andrea and all his T18 friends at 20.30 on 27th October 2012. Angelo
weighed a perfect 4 pounds 11 ounces and was 48.5 centimetres long.
Everyone left the hospital by 10.30 pm and left me
and Joel with Angelo Jack. I had to leave Angelo with his daddy as I had to go
to theatre to be stitched up as Angelo shot out of me so quickly that he gave
me a 3rd degree tare. I wasn’t impressed about having to go to
theatre and have a spinal done to make me numb so that they could repair me.
The spinal scared me even more than the labour pains, I am so proud of myself
for the fact that I did my whole labour only using entonox, tens machine and
paracetamol. Mum and Joel watched Angelo be born, they said that he flew out of
me; the midwife said he came out so quick that the remaining water behind him
flew across the room and hit the curtain, door and the neonatal doctor. The
midwife also told me that Angelo was born with his head back and looking up to
the sky; he was being a star gazer. Malcolm came from now I lay me down to
sleep and took some photos of us and of Angelo. Angelo is just so perfect in
every way, he’s far too beautiful for this earth, and I know he will be
watching over us from above.
28th October 2012, Tracy the bereavement
midwife came in to see us today, she did the casts and foot prints of Angelo’s
feet with us, we have got a lock of his hair. Overnight last night I had Joel
and Angelo in bed with me, we all slept together and had cuddles together. We
got Angelo put in the Angel room for tonight, we gave him a kiss and a cuddle
and said goodnight to him and that we would see him in the morning. The midwife
took him to the angel room, I fell asleep eventually. Auntie Terrie and Uncle
Paul came in today to see us along with my Nan. They came in and had a cuddle
with Angelo. Katie came in too today to come and see us.
30th October 2012, I am home but feeling
so empty. I am so proud of our son, I carried him for 40 weeks and 3 days, we
spent some precious time with our special boy, and we created so many memories.
I know he will be watching over us, he will be playing games up in heaven.
Angelo will always be with us where ever we go; he will always live in our
heart and mind. I carry his blanket around everywhere with me because it’s got
his smell on it, gives me a bit of comfort knowing I have that with me. Angelo
Jack we love you so much, miss you so much already too. X x x x x x x x Good
night Angelo Jack, mummy and daddy love you so much, fly high baby boy, watch
over us, guide us and give us strength.
31st October 2012, I had to go and
register Angelo’s birth and death today. The hardest thing was registering his
death. My boobs started leaking last night too; it hurts so much thinking that
there is milk there that won’t be getting used, when it should be getting used
by Angelo. Tracy came to see me today, she bought me the casts of Angelo’s
feet, they are amazing, and they have come out so clear. We will never forget
his little feet, they mean everything to us. Angelo sent us a rainbow today, it
was as bright and clear as you like, I took a photo of it but it’s very very
faint on the photo even though it was very bright in the sky, I think Angelo is
playing games with us and being a right cheeky little monkey. Thank you so much
Angelo, you have made mummy’s day, I love you so much son.
September 2012
1st September 2012, we are now 32 weeks
and 3 days; I can now officially say that we are due our precious little boy
next month. It’s scary but exciting all at the same time. Have had a bit of a
downer day today, woke up this morning and just sat and cried, in a way the
reality of the unknown hit me in the face, I want our precious little boy now
more than ever. I went out to a friend’s house to distract my mind, we made
cakes and made dinner, had a right laugh. I came home at about 8pm as had to be
online for 8.30pm as there has been a secret stork parcel sitting on my table
since Thursday and have been told that I’m under strict instructions not to
open it until told, but tonight is finally the night. Have to wait until 9pm
though, I had to start it off, had this message Right
My GORGEOUS Ladies and Babies, There have been...
80 Babies,
79 Parcels
78 Ladies
32 Posting Days
80 Babies,
79 Parcels
78 Ladies
32 Posting Days
30 Receiving Days
Millions of Spreadsheet pages
Hundreds of scared postmen
Countless added grey hairs
1 or 2 Heart Attacks
And a cup full of stress for good measure!
It can only mean one thing.... It's here my beautiful Ladies....
♥ SECRET STORK DUE IN OCTOBER 2012 ♥
you have all been SUCH a pleasure to get to know, help and watch you all get so excited over this!!!
Stacey - You are to open first - Nearly all of the ladies in here have helped chip in towards your gift - so from all of us - Lots of Love! ♥
once Stacey has opened the rest of you are good to...
READY - STEADY - GO!!!!!!
Millions of Spreadsheet pages
Hundreds of scared postmen
Countless added grey hairs
1 or 2 Heart Attacks
And a cup full of stress for good measure!
It can only mean one thing.... It's here my beautiful Ladies....
♥ SECRET STORK DUE IN OCTOBER 2012 ♥
you have all been SUCH a pleasure to get to know, help and watch you all get so excited over this!!!
Stacey - You are to open first - Nearly all of the ladies in here have helped chip in towards your gift - so from all of us - Lots of Love! ♥
once Stacey has opened the rest of you are good to...
READY - STEADY - GO!!!!!!
I opened it and cried but they were good tears, all I
can say is that everyone who has been involved in it has been so thoughtful to
me, Joel and Angelo Jack. We can’t thank you all enough.
6th September 2012, we are now 33 weeks
and 1 day. Went back to Milton Keynes again today, saw another consultant but he
works closely alongside Mr Hanna, he was lovely too, We set up a plan of action
with regards to delivery, I will be left to go in to labour on my own, we don’t
know when it will be as I have got too much fluid around Angelo, there’s too
much fluid because he’s not swallowing properly due to his diaphragmatic
hernia, they have said they think he has got heart problems because they can’t
see his heart properly but I don’t believe it. I will get an appointment to see the bereavement
midwife Tracy Rae, I will have a last ultrasound done to get good quality
pictures over the next couple of weeks, I will get an ultrasound on admission
to labour ward to get a last look at our son before I have him providing there
is somebody there who can do it, I will have intermittent monitoring in labour
but have asked not to be informed if there is any evidence of distress and I
will meet with the neonatal team to discuss a plan of action with them. The consultant
had a feel of Angelo but could not determine the position as there is too much
fluid in the way which is making it harder to feel him. He had a read of my
birth plan and is happy to give me what I have written in it. I know I have got
some tasks to do before I have Angelo but I can’t do it, I don’t feel that I
can. This should be the beginning of a new chapter, but deep down I know it’s
the end, I know our son will pass away but I just don’t know when. No matter
what time we get with our son we will value and treasure every second of it.
Angelo Jack, mummy and daddy are not giving up on you no matter what, you are
in control son nobody else, you are the one making the decisions, mummy and
daddy love you so much. I can feel you wiggling around while I’m sat updating
this, you are a right little wiggle bum.
9th September 2012, been packing boxes up
today ready for moving out at the end of the month, packing Angelo’s things up
felt absolutely awful, it felt like I had given up on him and was putting him
away forever, I know in a sense it makes it easier that I know we are moving
house but at the same time I know I probably won’t be able to use his things. I
have kept out his clothes, teddy’s, blankets and his boxes that we have
started. They are things that are not going anywhere just yet, in a way they
are a comfort to me. When we went to be Angelo decided he was going to play
football with his daddy’s hand, my god some of them kicks that he gave were big
ones, it’s his way of saying mummy, daddy it’s ok, I’m still here and fighting.
10th September 2012, had a phone call today
from Milton Keynes, I have got my last scan at 2.30 pm tomorrow, I have got all
mixed emotions about it, I am also seeing the bereavement midwife tomorrow to,
just to discuss our wishes for what we want to be done during and after
Angelo’s birth. Had a parcel come from America today too, received a Gemma
bear, had a little note with it too, I dived out of bed when I heard the door
go because I knew what it was and didn’t want to wait any longer for it.
11th September 2012, went to Milton
Keynes again today with Joel to have our last scan. Angelo still has the same
problems as before, none of them have gone away or got any worse, they say he
has a problem with his heart but I don’t believe it. I met Tracy Rae the bereavement
midwife today as well. She tried to read my birth plan but couldn’t read it as
it was making her cry; she took a copy of it away to read later. Angelo is
still growing but not as well as he has been previously, his growth rate has
started to drop off, his estimated weight is now 3 lb 10 ozs. I have got extra
fluid around him, the deepest pool is not 9.5 cm, I need to edit my birth plan
slightly as Milton Keynes have asked us our opinions on resuscitation and
ventilation so they will resuscitate and ventilate if we want them to. I have
asked for them to do intermittent monitoring of our sons heart beat during
labour but I do not want them to discuss with us if our son shows any signs of
distress. I will upload a scan picture later on when I have seen dad and
scanned it in to the computer.
17th September 2012, we are now 34 weeks
and 5 days in to the pregnancy. We went to Milton Keynes again today to see the
neonatal consultant to discuss the plan of action, our wishes, feelings and
thoughts. We have told them that we want to give our son the best possible
chance and make him as comfortable as possible, we want him to be given oxygen,
feeding tube, pain relief and if necessary ventilation but under no
circumstances do we want him to be resuscitated. Plan of action is to assess
thoroughly at birth, he will be assessed for breathing distress, warmed, dried
and stimulated, if he is breathing regularly or gasping he will be given facial
oxygen and airway will be opened, if he is not breathing then he will be comforted
and given to us, he will not be given forced breaths but will be given oxygen.
He will not be given and resuscitative measures i.e. no drugs or chest
compressions, he will not be incubated for lung expansion. If he is
spontaneously breathing and responds to oxygen and continues to react in a
positive way, efforts will be made to transfer him to the neonatal unit. If he
deteriorates before he is transferred to the neonatal unit he will be given to
us with oxygen. In the neonatal unit he will be given palliative care and
constantly assessed, they will keep us informed at every stage. We saw my consultant
as well today and had another scan to have a good look at Angelo’s heart, his
heart is in the right hand side of his chest, the right hand side of his heart
is dilated with a small left side, the septum does not look normal, he has a
complex cardiac problem to add to the list of his other problems. Angelo
however is still growing and has got ridiculously long legs; his estimated
weight is now 3lbs 11ozs. I know we are doing everything that we can possibly
do for our son; it just hurts so much to think that he has got another problem
so the odds are stacked against him and his chances of survival are further
reduced .It hurts to think we probably won’t get to bring our son home. It
hurts to think it should be the beginning of a new chapter in our lives but it
will be the end. Angelo Jack carry on fighting and proving the wrong, mummy and
daddy love you so much.
19th September 2012, we are 35 weeks
exactly, so proud of my little man with what he is achieving. I have been and
seen my midwife today, bump is measuring 33 centimetres, Angelo’s heartbeat is
nice and regular at 148 beats per minute, and Angelo is starting to move down
in to my pelvis, his head is 4/5ths palpable. I had my hair cut off today too,
I walked in to the house and looked at Joel, he said excuse me love my wife
will be home any minute do you mind leaving? Hello I am your wife, made me
laugh so much. We are having a bump photo shoot done at 6.30 tonight, can’t
wait for that, so excited. We enjoyed our photo shoot tonight, can’t wait to
see the pictures.
21st September 2012, I had a phone call
from the photographers today giving me our username and password for our
pictures. I logged straight on and had a look at them, wow they are amazing.
23rd September 2012, we are now 35 weeks
and 4 days, we went to build a bear today, we made our son a special bear, we
named it baby Angelo. Angelo has been a right wiggle bum today, he’s been
playing his usual games with his daddy, it’s so nice just to lay, feel and
watch. I love my two boys so much.
26th September 2012, we are now 36 weeks
in to the pregnancy, a stage where no doctor said that we would even get too. I
am so proud of our special little boy, he’s fighting so hard and proving
everyone wrong, he is a little star and such a big fighter. I have got to see
my midwife again on the 3rd October and to see the consultant again
on the 8th October. I have had a look at the statics on our blog as
well today; we have now had 8485 views. It has been viewed in the UK, US,
Australia, France, New Zealand, Germany, Italy, Poland, Slovenia, Russia, South
Africa, Netherlands, Canada, Ireland, Switzerland,
Argentina, Isle Of Man, Singapore, Gibraltar, United Arab Emirates, Denmark,
Israel, Hungary, Chilli, Philippines and Pakistan.
30th
September 2012, we are 36 weeks and 4 days in to the pregnancy, it has gone so
quickly can’t believe that we are in October tomorrow and I can’t believe we
only have 24 days left until Angelo’s due date, it’s scary to think he has
fought this far but at the same time no one knows what time we have got left
with him. I keep trying to picture his little face in my mind, part of me wants
to see him now to see who he looks like and how much hair he’s got but at the
same time another part of me wants him to stay put in my belly forever because I
know he’s safe where he is. Last night I was sat on the sofa watching tele with
Joel’s mum, we were sat eating chocolate buttons, I put a handful of chocolate
buttons on my belly and Angelo was kicking them off, it was so funny to watch.
It was the first time that Joel’s mum had seen my belly move so much. I am
convinced that Angelo was saying mum I’m not your table so move everything off
of me, Joel’s mum said that he was saying mum stop eating chocolate, who knows
what he was trying to achieve apart from Angelo but he defiantly creates his
mummy some lovely little memories. In the terms of t18 babies, Angelo is defiantly
a little miracle as he is still going strong and fighting at this late stage in
my pregnancy. I just hope and pray every day for a miracle and that he carries
on fighting and carries on being a miracle. Angelo Jack your mummy and daddy
love you so much and you are so special to everyone in the family.
August 2012
2nd August 2012, I went and saw the
midwife this afternoon, it wasn’t my usual midwife either, I didn’t like her,
she was rude and rather abrupt, dad came with me and he thought the same.
Midwife sent me down the hospital to be monitored as Angelo Jack had been having
reduced movements yesterday and today. I went down to the hospital at 3pm and
came out at about 8.30 pm, 5 and a half hours of boredom, I sat around for the
first 2 hours waiting to be seen, I was eventually called and put on to a CTG
machine to monitor Angelo Jacks heartbeat and movements, the little sod made me
out to be a liar because as soon as I was put on the machine he started moving
and going mad, I defiantly have one cheeky boy in my belly who like to keep me
on my toes and give me a scare. At about 6.45 they took me off the monitor and
sent me for a walk for half an hour to try and get him to quieten down a bit,
me and dad went to the canteen to get some dinner as I was starving. I went
back to the day unit at about 7.15pm and was put back on the monitor; Angelo
Jack was still very active. I sat on the machine and saw the doctor at about
7.50. The doctor had a chat with me, had a look at the trace and was happy to
send me home, I finally got home at about 8.30 pm after taking dad underwear
shopping.
4th August 2012, Angelo Jack has been
quite active again today; I think he is making up for his quiet spell that he
has had this week. I finally had to take my rings off
and belly bar out, my rings are feeling very tight and I keep catching my belly
bar which is making my belly button red and sore. I feel so bare without them.
We are now 28 weeks and 3 days, he’s
still proving the doctors wrong, he is out little fighter and a miracle baby.
Carry on fighting Angelo Jack; mummy and daddy love you so much.
12th August 2012, we are now 29 weeks and
4 days, Angelo was on a quiet day, well until we went to bed, he decided that
he was going to start using daddy’s hand as a football, it was so nice to feel
and to hear daddy getting excited with every movement and kick that he felt. My
belly button is starting to pop out now too.
13th August 2012 I decided to make a cake
today but it was a disaster, I was reading the scales wrong when I was making
it and didn’t realise until after. Angelo you are making mummy’s brain turn to
mush but I love you so much and wouldn’t change a thing. Looked at the stats
for my blog today, we have had 3313 views of our blog to date, it has been
viewed in the UK, US, Australia, Canada, Russia, Singapore, Gibulatar, Ireland,
Germany, France, South Africa, United Arab Emirates, Denmark, Israel,
Argentina, New Zealand, Australia, Switzerland Hungary, Chilli, Philippines, Pakistan, and
Netherlands.
16th August 2012, we are now 30 weeks and
1 day in to the pregnancy. I saw the midwife today, bump is still growing, it
was measuring 29 centimetres today, heart rate was nice and regular, Angelo is
still lying transverse, and he’s been like that since 27 weeks so he must be
comfy. The glucose test that I had done came back normal; iron levels came back
fine at 12.2, blood group is o positive and has no antibodies either. Just
booked a hotel for next weekend to go and meet Mel and Steve (Trisomy Angel
baby Liam’s mummy and daddy), so excited for that. I also see a new consultant
at another hospital next week too, it seems like they have so much more hope
and from speaking to them they are willing to give our son a chance as I know I
will not give up without a fight and neither will our son. Angelo has been
quite active today, he kicked the midwife when she was listening to his
heartbeat and prodding my belly to get a measurement. Angelo the only thing
that I wish for is that you would stop making yourself comfy on my sciatic nerve, it’s so painful for mummy
and all daddy can do is call me and old lady and laugh as I keep grabbing on to
things to walk around the house and limp. I have such a strong little boy who
likes to be cheeky and I know he won’t give up without a fight either. Angelo’s
nanny and pappy came back from Norway and bought him back a little moose teddy;
they bought us back a beautiful angel.
18th August 2012 we are now 30 weeks and
3 days in to the pregnancy, it seems like it’s going so quickly. I am getting
scared now as Angelo’s due date is getting closer and closer, I know he’s a
little fighter but I want him to stay in my belly forever, I want him to stay
there as I know he’s ok in there. I feel him move everyday and listen to his
heartbeat daily, this is a feeling that I never want to lose. I suppose it’s
the fear of the unknown as we take each day as it comes because we don’t know
what will happen from day to day. I know while he is in me he’s growing, he has
a good heartbeat and he’s safe, I believe it’s the safest place for him. Angelo
Jack carry on fighting, mummy and daddy love you so much.
20th August 2012, we are now 30 weeks and
5 days in to the pregnancy. Today is our 1st Wedding Anniversary, I
have been looking back thinking of our special day, yes we have had many
challenges in our 1st year of marriage but it makes us stronger as a
couple, we have overcome the challenges and this is the first year of many. I
entered our blog in to a Nuby Blogger Competion too today, it’s a competition
for 1st time mummy’s, I think our blog is a special one as its about
us and our special little boy. Only 3
more days until I go to Milton Keynes hospital and see a new consultant who is
willing to give our son the best possible chance at life, I’m so excited as I
will be having another scan as well so I will get to see our beautiful son
again. So excited for the weekend as we are going away for the weekend to meet
Liam’s mummy and daddy, really looking forward to it.
22nd August 2012, we are now 31 weeks
exactly. I see my new consultant tomorrow at Milton Keynes hospital. Today is
mum and dad’s 3rd wedding anniversary and they have been together 28
years. Today I have spent most of my day thinking about Angelo but also about
my big sister as it would have been her 25th birthday today. RIP
Andrea, you are always in my mind. Happy Birthday sis, love you, xxxxxxx.
23rd August 2012, I saw my new consultant
today, wow he is amazing, and such a lovely man. Angelo
still growing, estimated weight now 2lbs 15ozs, have got a bit of
polyhydramenious now. Liked the consultant that I saw he’s lovely, yes ok got
told the facts and the figures but they are so much more positive, they did
another scan and can’t say for definite if he’s got his bowels on the outside
or not, abdominal wall is an abnormal shape, consultant agreed with the finding
of cyst in the cord and stomach being in the chest cavity. The little bugger is
head down and quite low already. I hope he doesn’t think that he’s making an
appearance anytime soon. I have got another scan picture to put in, I will do
that as soon as I have got dad to scan it in to the computer for me. Off to
Sutton Bridge tomorrow to meet Mel and Steve, so excited I can’t wait for it.
24th August 2012, we
left home at 8am this morning and got to Sutton Bridge at 10am, only had to
stop once because I needed a wee and to change over driving. Mel and Steve are
lovely, we had a laugh, went and checked in to the hotel at about half 6 and
then went out for a meal at about half 7. It was a lovely meal, you couldn’t
get any more food on to the plate if you tried, you certainly couldn’t moan
about the portion sizes. We got back to the hotel at about 10 after going to
the garage to get something to drink and to get some ice-cream before going
back to the hotel.
25th August we are now
31 weeks and 4 days, we woke up at 8am, laid in bed until about 9, got up and
had a shower, packed everything up before we went back to Mel’s and Steve’s for
breakfast. Steve cooks and amazing fry up, he can certainly cook that again for
me anytime of the week. We sat chatting and watching tele until Mel had to go
work and then left at about 4, went to McDonalds for mcflurry which I finally
got after craving it for so long. We got back in to Northampton at about 6; me
and Joel went for a meal and then got home at about 7. We are both knackered
but it was worth it, the weekend was amazing, it was full of laughs and one
that we certainly won’t be forgetting any time soon, can’t wait to do it all
over again.
28th August 2012, we are now 31 weeks and
6 days; Angelo Jack decided he was going to be awkward and stubborn today as he
decided he was not going to let me feel him move. I went down the hospital at
1.30pm to get everything checked and he soon started to move about, I got put
on the CTG machine for half an hour to check his heart rate and monitor his
movements, I felt him once in the whole time that I was on it. Then had to sit
and wait for the doctor to review everything. The doctor came around and did
another scan on him, he’s growing well, his estimated weight is now 3 pounds
and 7 ounces, the doctor checked all of the blood flow to the cord and placenta
and said that it is all good, they think the reason that I’m not feeling him as
much as I should is because I have got extra fluid around Angelo and that he’s
not staying in the same position. He has flipped around and is back with his
head under my ribs. I finally got home at 6pm, after another 4 and a half hours
being spent down the hospital.
29th August 2012, we are 32 weeks today.
I am so proud of our son as we are somewhere where doctors said we would never
get to. Angelo has moved more today, I am enjoying every movement and kick that
he gives me. I looked at the stats for our blog today, it has had 6356 views to
date, and it seems to have gone mad. It has been viewed in the UK, US,
Australia, Russia, Canada, Slovenia, Ireland, New Zealand, Germany, France,
Netherlands, Switzerland, Argentina, Isle Of Man, Singapore, Gibraltar, South
Africa, United Arab Emirates, Denmark, Israel, Hungary, Chilli, Philippines and
Pakistan. I can’t believe how many views we have had, I never thought that our
blog would be so popular and that it would make our son so famous before he’s
even born.
30th August 2012, I saw the midwife
today; Joel came with me and heard his son’s heartbeat nice and clear for the
first time. Bump is measuring 30 centimetres so it’s growing well. BP is fine;
Angelo’s heartbeat is fine, still nice and strong. Midwife had a look at my
birth plan and said it was a very nice birth plan and has got a lovely opening
to it. Anglo has been a right little wiggler today, we have been playing games
with him too, he would kick me belly so we would poke him back and he would
kick again, then we put an oasis bottle lid on my belly and was just sat
watching it move when Angelo was moving about. Our little boy is so special to
us, he is a little fighter and we are creating every single little memory that
we can possibly create with him. Angelo’s favourite game is to use his daddy’s
hand as a football. Mummy and Daddy love you so much Angelo Jack Smith.
July 2012
1st July 2012 we are now 23 weeks and 4
days, little man has been quite active today, was sat watching a video of angel
baby Liam and Angelo Jack started to move about and kick me. Been to Mum and
Dad’s house for dinner tonight, was absolutely lush, came home took some
pictures of my bump and had a shower. Put plenty of coco butter on my belly and
then came and sat with Joel chilling out watching American pie again. Got 11
days until I see the midwife again and 27 days until our 4d scan, can’t wait to
see our special little boy again. Let’s see if Angelo Jack goes mad when I go
to bed again tonight and if he wakes me up again in the morning, he’s a little
monkey but I treasure every movement and kick that he gives me, every day is
special to us as is every week and month that passes. Each week is another week
closer to meeting our special boy and holding him in our arms. Angelo Jack we
love you millions.
6th July 2012, I received a phone call
from the hospital giving me a list of appointments to see the paediatric
consultant. We are seeing the paediatric consultant of Friday 13th
July 2012 at 10am. I will go and see them armed with my list of questions and
will fight to do anything for my son. He has been quite quiet today but has
moved a bit, just to reassure myself I listened to his heartbeat when I went to
bed, I had it very clear and loud, the clearest I have ever had it, heard it
for about 10 minutes then he decided to move away from it and start kicking the
monitor the little monkey.
7th July 2012, I went to Kim and Paul
wedding today, little man so active comparing to yesterday, he was kicking my
bladder all the way through the service and then when it came to eating a meal
he started to kick my ribs. Had lots of pictures taken and I took a few too.
The weather wasn’t too bad; it was quite good to us. It makes me laugh because I
got up at 8.30am had a shower, put my cream on, got dressed and did my make-up,
all of that took me an hour so it was 9.30am before I had any breakfast, I
washed up and then put my shoes on and went straight out the door for the bus
in town. Had to go and get a pair of tights as the pair I had were laddered, then walked down to a friend’s
house, had a drink, got changed topped up my make-up and then left to go to the
wedding. Went to the reception and then Joel came to pick me up at half 5 to go
to his parents as we were having a takeaway curry with them. By the time we got
home it was about 8.30 pm I was absolutely shattered so went to bed and put the
television on in bed and fell asleep with it on.
8th July 2012, spoke to Nan and Granddad
this morning as when I was in town the other day I got some fresh carrots,
broccoli and peas. Started preparing dinner and couldn’t remember what to do
with the peas so rang Granddad to ask him, he found it hilarious and couldn’t
help but laugh, I think it’s a bit of a baby brain moment.
10 July 2012, we went to bed at about 11pm, we lay
in bed and cuddled up together. Joel put his hand on my belly and could feel
Angelo Jack moving about; he fell asleep with his hand on my belly giving his
son a cuddle. Angelo Jack was sticking his foot out last night too.
11th July 2012, have midwife tomorrow,
went to dentist today, survived it even though I could feel my heart rate going
up, Angelo Jack certainly sensed it as he was kicking away the whole time as if
to say mum it’s ok calm down please. We walked to the bakery afterwards to get
some lunch and we defiantly enjoyed it. I set up a page on facebook for Angelo
Jack, the link is https://www.facebook.com/groups/262631393838701/.
My blog has gone mad as we have had 2134
views, it has been viewed in the UK, US, Russia, Canada, Australia, Denmark,
Singapore, Germany, Ireland, Israel, France, Argentina, South Africa, New
Zealand, Gibraltar, Switzerland, Hungary and Chilli.
12th July 2012, I have seen the midwife
today, she measured my bump and its measuring bang on dates, measuring 25 centimetres
and I am 25 weeks and 1 day today. Heard little mans heartbeat again today too,
it was 145 beats per minute; he was a little monkey to let us listen to it. He
was sleeping until my midwife Jacqui started prodding and poking him so he
started to move around and play football with the Doppler, he kicked it off of
my belly but it was so funny. I recorded his heartbeat on my phone so that I
have got a recording of him. I have to have a glucose tolerance test on the 27th
July, oh the joys of being starved from 10pm the night before. I see the
midwife the following week. We see the paediatric consultant tomorrow. I had a
phone call from great Ormond Street telling me to get a referral done to
University College London Hospital and then they will refer me to great Ormond Street
to tell me if they will operate on him when Angelo is born, providing all is ok
and he is alive. I’m not getting my hopes up as I don’t know what the outcome
will be but I am trying my hardest to do everything that I can possibly do for
my son. Angelo Jack is so active tonight, I have had a bath which has calmed
him down a bit but I don’t know how long for. Only 17 days left until we have
our 4d scan and see our son again, I can’t wait, I’m so excited, and I feel
like a kid with a new toy.
13th July 2012, I have seen the paediatric
consultant today, I think they are useless. They have told us that they won’t
ventilate or operate on our son, he can have oxygen. They think that he will
probably be born sleeping but if he’s not then they think he will only live for
minutes. They think that he will be born looking very blue and he will struggle
to breathe due to his diaphragmatic hernia and his lungs not being developed
properly. I wish that I could take it all away from my son and that it was me
who had it. They have said that if he proves them wrong and lives for hours and
is making an effort to breathe then they will put a feeding tube in place, will
give him oxygen and pain relief. They won’t take him away from us and put him
on his own. We will have a private room at the back of the labour ward away
from everyone else. I know whatever happens nobody can take away the fact that
me and Joel will still and always will be his mum and dad. I have got some more
reading and research today but I know with his problems his chances are slim
but I just have to hang on to hope and faith. I know deep down that we will
probably lose our son but he will always remain in our hearts. Went out with
Mum, Laurissa, Peter, Mums friend and her daughter to berserk to distract my
mind while Joel was at work, as I was driving myself mad sitting at home on my
own. I am laid in bed with my laptop on my belly watching tele and Angelo Jack
is going mad kicking away and sticking his bum out, I think it’s his way of
saying mum move the laptop it’s not comfy. Angelo means messenger and angel and
Jack is after my granddad. Angelo Jack is out little miracle, I just hope he
has the strength to carry on fighting and prove everyone wrong. Angelo Jack
mummy and daddy love you so much, you are our world and you mean everything to
us. You will and are making mummy and daddy so much stronger even though it
doesn’t feel like it at times.
14th July 2012 we went to Nottingham
today, we went to see some friends and go to Natalie’s baby shower, we had a
right laugh, it was a good night. Joel stayed at Natalie’s house with the men
they had takeaway while we had picky bits, drinks and games. I kept moaning at
Joel on the drive over to Nottingham because Joel put some music on and Angelo
Jack decided to start wiggling about and kicking my bladder, not a very good
move with a full bladder. It was late before we got home so when we got home we
went to bed and put the tele on, we laid in bed watching tele and had a drink
before going to sleep. Angelo Jack was a wiggler most of the night, it was nice
to feel him so much in one night, although he did keep waking me up so I had to
keep getting up to have a wee all night long.
15th July 2012 we didn’t wake up until
11.30 this morning, couldn’t believe it as we never sleep in until that time.
Got up at 12.30 and made Joel a bacon sandwich and I had an egg sandwich, we
went out at 13.30 and had a cavery lunch with Joel’s parents, brother, his
brothers girlfriend, nieces and nephew. After lunch we went back to Joel’s
parent’s house had a chat and a drink before falling asleep in the
conservatory, we then came home; I did some of the housework while Joel cut the
grass. Angelo Jack has been very quiet today, probably because we have had late
nights all weekend and he has been quite active all weekend so he’s having a
lazy day. We will listen to his heartbeat later on tonight when we go to bed
just to make sure he’s ok and put our minds at rest, we will listen if he’s
playing ball and doesn’t do his usual trick of moving and kicking the monitor
as soon as I put it on, he’s such a little monkey but we wouldn’t change him
for anyone or anything. Mummy and Daddy love you so much Angelo Jack.
16th July 2012, Angelo Jack gave us a
heart attack today, I hadn’t felt him move since 11 pm last night, and I
started to panic so I rang my midwife. She sent me down the hospital to be seen
and checked over, had a scan to check and all is ok. Angelo Jack Smith you are a little sod for scaring mummy and daddy today
by not moving, went to the hospital and got checked out, the little sod is
fine; he soon started wiggling when they scanned him just to check he was ok.
All the water levels are fine and we got told that his growth is not bad
considering his condition, he on the lower end of average, let’s hope he stays
that way. We love you Angelo Jack but we don’t appreciate you giving us a heart
attack, carry on growing, fighting and proving the doctors wrong but at least
we got a sneaky look at you again today, you little monkey.
19th July 2012, Angelo
Jack has been quiet today but he was having a big party yesterday. I have been
out catching up with friends today so haven’t been at home much. Had a nice
bath tonight too as have got a lovely clean bed to get in to tonight, can’t
wait but I officially know I’m pregnant when I can’t get out of the bath, had
to shout Joel to come and help me and he found it hilarious, he said ok see you
in an hour I’m just going to the pub, cheeky sod. Only 9 days until we see our
son again but this time on a 4d scan, really can’t wait for it, I really want
to see what he looks like.
25th July 2012, today we are now 27
weeks, another week has gone by and he’s still fighting and proving everyone
wrong. He is our little fighter, a special miracle. Had a bbq at mum and dad’s
house today, then went on to have a massive water fight, we soaked dad through
but it was such a laugh, Mum and dad we laughing, the kids were laughing and
Joel was laughing too, we were all in hysterics. You would think by now that
dad would know me and my little tricks but obviously not, I say to dad let me
have the hose I want to play with the kids and then turn it on him, oh my god
it was such a laugh, can’t believe how much we were laughing tonight. When we
were laid in bed tonight Angelo Jack was going mad, he was off on one, Joel
felt him kick nice and strong for the first time as he went to sleep with his
hand on my belly, he kicked Joel’s hand about 10 times, it was so nice. I can
only picture the look on Joel’s face in my mind as we were laid in a dark room
but I can imagine that it would have been a picture. I love my two boys so
much, Angelo Jack is our little fighter and Joel is my hero.
26th July 2012, only 2 more days to go
until we see our son on 4d scan, we are so excited for it, it will be amazing.
We have now got 100 members on Angelo Jacks page on facebook. We have had 2696
views of my blog to date, it’s been viewed in the UK, US, Australia, Canada,
Russia, Singapore, Gibulatar, Ireland, Germany, France, South Africa, United
Arab Emirates, Denmark, Israel, Argentina, New Zealand, Australia,
Switzerland Hungary and Chilli. It seems
like it’s getting further and further around the world, it’s amazing to know
how many people have looked at my blog and have read it. I know I am doing my
part to get awareness out on to the world on Edwards’s syndrome.
28th July 2012, well today is finally the
day for our 4d scan, can’t wait to see our son again, we are so excited. Joel’s
parents came with us for our 4d scan, they came and picked us up at 1pm, we got
over to baby bond at about 1.40; we went for a walk and then back to baby bond
for our scan. We had a small problem which was that the charity forgot to make
payment for our scan; we couldn’t get hold of anyone as the charity is based in
America. We resolved the problem by Joel’s parents finishing paying off the
balance for us so that we were able to have our scan done. When I got home I
sent an email to America to try and sort out the problem and to try to get my
Father in laws money back. It was amazing to see our son in 4d, he looks like
his daddy but my parents can see me in him too. Half way through the scan
Angelo Jack had decided that he had had enough, he kept putting his hands up to
his face to hide his face and then he turned his back to us, he’s so stubborn
and cheeky. I went for another walk for about half hour and had a chocolate bar
and bottle of fizzy cold lucozade. When we got back he had moved and decided to
play ball again, he gave us some beautiful pictures. I will put some of them on
here as there are 69 images in total, if you would like to see all of them then
they can be viewed on facebook on Angelo Jacks page, the link is https://www.facebook.com/groups/262631393838701/
Please feel free to request to join and we will add you to the group so you can
view and comment on his pictures. The lady that did our 4d scan was amazing,
she was very patient and took her time, she couldn’t see an omphalecele like
the doctors said he had got, she could however see a cyst in the cord close to
the abdominal wall so hopefully she is right, when I see my consultant I will
be challenging him. Angelo Jacks estimated weighted is 2lbs 2 ozs so he’s not
as small as doctors have made out, hopefully he will be about 4 and a half lbs
when he’s born.
29th July 2012, yesterdays experience had
made me think about helping others. It has inspired me to set up my own charity
in order to help other mummy’s and daddy’s with trisomy babies. Without
somebody telling me and putting me in contact about the charity that helped us
then we wouldn’t have known about them and we wouldn’t have been able to have
our 4d scan done. I have looked around in the UK and cannot see any charity
that does the same thing or similar to what the charity in America does. This
will be a long term goal that I set myself to do.
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